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In partnership with

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Approximately 70% of people diagnosed with epilepsy should be seizure free given the appropriate treatment. Currently it is around 52%. Consequently, 18% of people with epilepsy are currently having seizures when they could be seizure free.

For these people there is a significant impact on their quality of life including driving, relationship difficulties and an increased likelihood of depression. They also have an increased risk of Sudden Unexplained Death in Epilepsy (SUDEP). It is vital that all patients are supported well and that this is recognised and reflected between the secondary care consultant, GP and epilepsy specialist nurse where one exists. Due to variability in service provision, many people are not receiving the support they require outside of hospital. This leads to an increased risk of seizures, acute emergency admissions and inadequate support for specific issues such as pregnancy, safety and employment.

It is therefore vital that GPs have access to a high quality learning module to enable better support of people living with epilepsy. Without this resource there is a risk of continued inadequacies in the treatment and care of people with epilepsy. A risk of continued burden on the health care system in terms of repeat and unnecessary acute admissions and risk of continued unnecessary deaths within the epilepsy population, which could be reduced or prevented. 

The objectives of this project are:

  • To improve the confidence of GPs in supporting people living with epilepsy in general practice.

  • To ensure that GPs understand the role of primary care in the support of people living with epilepsy.

  • To improve the quality of patient annual reviews.

  • To ensure the patient's condition is as well controlled as possible, thereby reducing the incidence of SUDEP and unplanned admissions.

  • To improve the quality of life for people living with epilepsy by improving the management of their seizures, directing them to support from third sector organisations as well as information on employment, benefits and driving, taking a more holistic approach.

  • To raise awareness of the psychosocial issues people living with epilepsy can experience.

  • To ensure that those who are not well controlled or who require neurologist input are referred back in to secondary care in an expedient manner.

  • To ensure that women of child baring age are well supported if they are considering starting a family or to prevent unplanned pregnancies.

  • To ensure that women who are pregnant receive excellent ante natal and post-natal care. 

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